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Actor Colin Farrell talked about the difficult decision to move his son James, who suffers from Angelman’s syndrome, in a long -term care establishment.
The star nominated at the Oscars of The Banshees of Inishherinwho recently won a Golden Globe for the HBO series The penguinhas previously spoken of his son’s trip with rare disorder which causes development delays and affects the nervous system.
In an interview this week, the actor, 48, revealed that he and his ex-partner Kim Bordenave explore options to find a long-term house James, 21In case something should happen to them.
Parents fear that James will become a state service if his two caregivers were taken sick or killed in an accident.
He said Candis Magazine: “We want him to find a place where he can have a full and happy life, where he feels connected.”
Farrell also revealed that he was starting the Colin Farrell Foundation Provide support to people and families with intellectual disabilities through advocacy, education and innovative programs to honor his non -verbal son.
What is Angelman syndrome?
Angelman syndrome is a rare genetic condition that affects the nervous system and causes serious physical and learning disabilities, according to The NHS.
It is diagnosed by genetic tests to see if chromosomes or pieces of chromosomes are missing, examining the changes in the UBE3A gene.
People diagnosed with Angelman syndrome should need support throughout their lives.
What are the characteristics of Angelman’s syndrome?
A child with Angelman syndrome will start to show development delays at six to 12 months and may not start sitting or babble at the same time as other children.
Later, they may find it difficult to speak and have difficulty walking due to balance and coordination problems. Farrell previously revealed that he had been moved to tears when his son James took his first steps little before his fourth anniversary.
Some children can also undergo convulsions.
Syndrome is also generally associated with several distinctive behaviors, although a child with the disease cannot present them all.
These include frequent and smiling laughs, being easily excitable, agitation, having a short period of attention, having trouble sleeping and being fascinated by water.
How do you manage Angelman syndrome?
Anti-epileptic drugs can be used to help control crises in children who live them.
Physiotherapy can also help mobility and coordination problems and help prevent permanent stiffness of joints as people with Angelman syndrome age.
Communication therapy can also help those who are not verbal to communicate via sign language, makaton and other systems.
